(360) 333-9110 Marfan
(360) 333-9110 Marfan
95% of all Base Commissions are donated to the Marfan Foundation every month. Select the link below to see what is available for purchase.
My name is Michelle Gaddie. I am the mother of an 13 Year old little girl (Kendra) with Marfan syndrome. I developed this website to help raise awareness about Marfan syndrome and to help fund raise for The Marfan Foundation. I do this thru my sales of Color Street Nail Polish Strips. Your support of this initiative that benefits the Marfan Foundation is greatly appreciated. Check out the Blog Page for more about our family and our daughter Kendra!
On Oct 27th, 2004 we gave birth to our son Patrick Gaddie Jr. On Jan 19th, 2005 my son passed away from SIDS: a condition with no known cause, no known genetic testing to diagnose, and no treatment that can prevent it from happening. It was heartbreaking for our entire family and left a hole in all of our hearts that can never be filled.
On Aug 27th, 2007 we gave birth to our youngest daughter, Kendra. When she was two and a half years old I was travelling for work on a flight and I found a medical journal in the seat pocket on my plane. In that publication there was an article on Marfan syndrome. I had never heard of the disorder before, despite graduating from medical school. As I read the article I got a sinking feeling in my stomach that the clinical signs for this disorder matched my daughter. I just knew in my heart as her mother that I needed to address my concerns asap. As soon as I landed, I called my husband, told him my fears and implored him to make the first available appt. at the Mayo Clinic in Rochester, Minnesota for a screening for Marfan syndrome. Kendra’s genetic testing came back positive and that testing likely saved her very young life.
What is Marfan Syndrome? It is a genetic disorder that affects all of the connective tissue in the body. Connective tissue is the glue that holds everything together. People who have Marfan syndrome have very weak and fragile connective tissue. It affects the lungs, joints, eyes, skeletal system and the heart or cardiovascular system. It is a degenerative disorder with no cure. There is, however, medical intervention and treatments that with early intervention and diagnosis can save lives and allow these children – including my own – to live a normal lifespan. Without awareness of the clinical signs, diagnosis and treatment the disorder can lead to an early death. About half of people who have Marfan syndrome do not even know they have it. Sometimes when you hear of children collapsing and dying on a sports field it is due to undiagnosed Marfan syndrome. Raising awareness of Marfan syndrome has been a personal passion of mine. I may have not been able to prevent my son’s death, but if I can spare any parent the pain of losing a child due to undiagnosed Marfan syndrome I feel it is my personal calling to do so. You see, I believe that medical journal was left in the seat pocket for me to find and I am so very grateful it was there. If I had not found it I could have possibly have lost my daughter as well.
The Marfan Foundation is a 501(c)(3) nonprofit organization creates a brighter future for everyone affected by Marfan syndrome, Loeys Dietz syndrome, vascular Ehlers Danlos syndrome, and other genetic aortic conditions. It works tirelessly to advance research, serve as a resource for families and healthcare providers, and raise public awareness. future research and programs for those affected with Marfan Syndrome and related conditions
Base, color, and top coats of high-quality liquid nail polish in each strip.
Results in a brilliant, salon-quality manicure in just minutes. No dry time, smudges, or streaks. Lasts up to 10 days.
100% real nail polish, not stickers. Flexible—can be gently stretched for a perfect fit.
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